Idiopathic intracranial hypertension (IIH), sometimes called by the older names benign intracranial hypertension (BIH) or pseudotumor cerebri (PTC), is a neurological disorder that is characterized by increased intracranial pressure (pressure around the brain) in the absence of a tumor or other diseases. The main symptoms are stroke-like headache, nausea, andvomiting, as well as pulsatile tinnitus (sounds perceived in the ears, with the sound occurring in the same rhythm as the pulse), double vision and other visual symptoms. If untreated, it may lead to swelling of the optic disc in the eye, which can progress to vision loss.
IIH is diagnosed with a brain scan (to rule out other causes) and a lumbar puncture; lumbar puncture may also provide temporary and sometimes permanent relief from the symptoms. Some respond to medication (with the drug acetazolamide, Topiramate, Furosemide, others or a combination), but others require surgery to relieve the pressure. The condition may occur in all age groups, but is most common in women aged 20–40.
We researched this topic for you and found the following best online resources. They are categorized into basic, advanced, and research level based on the extent of information you need. You will be taken to the respective websites by pressing on the links below.
Basic information:
http://www.mayoclinic.org/home/ovc-20249919 mayoclinic pseudotumor cerebri
https://medlineplus.gov/ency/article/000351.htm medline pus pseudotumor cerebri
http://www.healthline.com/health/pseudotumor-cerebri health line pseudotumor cerebri
http://www.hopkinsmedicine.org/healthlibrary/conditions/nervous_system_disorders/pseudotumor_cerebri_134,57/ john hopkins medical library pseudotumor cerebri
https://www.aapos.org/terms/conditions/59 american association of ophthalmology and strabismus idiopathic intracranial hypertension (pseudotumor cerebri)
https://rarediseases.info.nih.gov/diseases/4561/pseudotumor-cerebri pseudotumor cerebri
http://www.pseudotumorcerebri.net/ pseudotumor cerebri
http://www.webmd.com/drugs/condition-1121-benign web md pseudotumor cerebri
http://www.healthcentral.com/migraine/types-of-headaches-193359-5.html health central idiopathic intracranial hypertension (iih) - the basics aka pseudotumor cerebri
http://umm.edu/health/medical/ency/articles/pseudotumor-cerebri university of maryland medical center pseudotumor cerebri
http://www.nytimes.com/health/guides/disease/pseudotumor-cerebri/overview.html new york times pseudotumor cerebri
https://www.verywell.com/pseudotumor-cerebri-3422005 very well pseudotumor cerebri (idiopathic intracranial hypertension)
Advanced information:
http://emedicine.medscape.com/article/1214410-overview medscape idiopathic intracranial hypertension
http://www.medicinenet.com/pseudotumor_cerebri/article.htm medicine net pseudotumor cerebri (idiopathic intracranial hypertension)
http://www.medtronic.com/us-en/healthcare-professionals/therapies-procedures/neurological/shunting-idiopathic-intracranial-hypertension.html medtronic idiopathic intracranial hypertension shunting
https://rarediseases.org/rare-diseases/idiopathic-intracranial-hypertension/ national organisation for rare diseases idiopathic intracranial hypertension
http://www.news-medical.net/news/20130313/new-procedure-to-treat-pseudotumor-cerebri.aspx news medical new procedure to treat pseudotumor cerebri
https://radiopaedia.org/articles/idiopathic-intracranial-hypertension-1 radiopedia idiopathic intracranial hypertension
http://www.mdedge.com/node/1489/path_term/30 md edge pseudotumor cerebri
Research:
https://www.hindawi.com/journals/criopm/2016/4756894/ eleni loukianou, anastasia tasiopoulou, constantinos demosthenous, and dimitrios brouzas, “pseudotumor cerebri in a child with idiopathic growth hormone insufficiency two months after initiation of recombinant human growth hormone treatment,” case reports in ophthalmological medicine, vol. 2016, article id 4756894, 5 pages, 2016. doi:10.1155/2016/4756894
mohapatra rn, pattanaik jk, satpathy sk, joshi s. isolated and silent spinal neurocysticercosis associated with pseudotumor cerebri. indian j ophthalmol [serial online] 2008 [cited 2017 jan 2];56:249-51. available from: http://www.ijo.in/text.asp?2008/56/3/249/40372
suri a, pandey p, mehta v s. subarachnoid hemorrhage and intracereebral hematoma following lumboperitoneal shunt for pseudotumor cerebri : a rare complication. neurol india [serial online] 2002 [cited 2017 jan 2];50:508. available from: http://www.neurologyindia.com/text.asp?2002/50/4/508/1325
http://jmedicalcasereports.biomedcentral.com/articles/10.1186/1752-1947-6-122 a 43-year-old woman on triptorelin presenting with pseudotumor cerebri: a case report by uday kumar bhatt et al., journal of medical case reports20126:122 doi: 10.1186/1752-1947-6-122
al-senawi r, ganesh a, al-busaidi a, al-futaisi a, al-habsi n, al-zuhaibi s. visual loss at presentation in children with pseudotumor cerebri. oman j ophthalmol [serial online] 2008 [cited 2017 jan 2];1:18-24. available from: http://www.ojoonline.org/text.asp?2008/1/1/18/43316
https://www.hindawi.com/journals/crin/2016/5273207/ umair syed ahmed, patrick bacaj, hafiz imran iqbal, and songul onder, “iga nephropathy in a patient presenting with pseudotumor cerebri,” case reports in nephrology, vol. 2016, article id 5273207, 4 pages, 2016. doi:10.1155/2016/5273207
http://jmedicalcasereports.biomedcentral.com/articles/10.1186/1752-1947-6-408 pseudotumor cerebri presenting with visual failure in promyelocytic leukemia: a case report by fahid t rasul et al., journal of medical case reports20126:408 doi: 10.1186/1752-1947-6-408
bakshi s k, oak j l, chawla k p, kulkarni s d, apte n. facial nerve involvement in pseudotumor cerebri. j postgrad med [serial online] 1992 [cited 2017 jan 2];38:144. available from: http://www.jpgmonline.com/text.asp?1992/38/3/144/688
https://www.hindawi.com/journals/criopm/2016/4756894/ eleni loukianou, anastasia tasiopoulou, constantinos demosthenous, and dimitrios brouzas, “pseudotumor cerebri in a child with idiopathic growth hormone insufficiency two months after initiation of recombinant human growth hormone treatment,” case reports in ophthalmological medicine, vol. 2016, article id 4756894, 5 pages, 2016. doi:10.1155/2016/4756894
http://jmedicalcasereports.biomedcentral.com/articles/10.1186/1752-1947-5-68 graves' disease presenting as pseudotumor cerebri: a case report by ester coutinho et al., journal of medical case reports20115:68 doi: 10.1186/1752-1947-5-68
http://www.ajnr.org/content/32/11/1986.full pseudotumor cerebri: brief review of clinical syndrome and imaging findings by a.j. degnana and l.m. levy published online before print june 16, 2011, doi: 10.3174/ajnr.a2404ajnr 2011 32: 1986-1993
https://www.hindawi.com/journals/criopm/2016/4756894/ eleni loukianou, anastasia tasiopoulou, constantinos demosthenous, and dimitrios brouzas, “pseudotumor cerebri in a child with idiopathic growth hormone insufficiency two months after initiation of recombinant human growth hormone treatment,” case reports in ophthalmological medicine, vol. 2016, article id 4756894, 5 pages, 2016. doi:10.1155/2016/4756894
Other helpful resources(support groups):
http://ihrfoundation.org/ intra cranial hypertension research foundation
http://americanbrainfoundation.org/disorders/index.cfm?event=view&disorder_id=1049 american brain foundation
Related videos:
https://www.youtube.com/watch?v=dvntqqahvxm pseudotumor cerebri
https://www.youtube.com/watch?v=8p_32bgu0x8 intracranial hypertension awareness video
https://www.youtube.com/watch?v=yxmmvnwgbje idiopathic intercranial hypertension/ pseudotumor cerebri
https://www.youtube.com/watch?v=ibwqbmu5_yk what is pseudotumor cerebri and why does it cause headaches?
https://www.youtube.com/watch?v=oo5romj4q0q what is pseudotumor cerebri? explanation to friends and family
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